In loving memory
Our Beautiful Karis
December 2007 - September 2018
Karis passed away in September 2018 of a brain tumour. She was only 10. Her courage, her cheeky smile, and her selfless love for others inspired us to create Karis' Helping Hand, so no family has to face this journey alone.
A Fighter from the Start
Karis had many other medical conditions and was poorly from a baby, spending her first 7 months of life in hospital. Then, at the age of 2, we found out Karis had an Aggressive Malignant Brain Tumour called a SPNET (Supratentorial Primitive Neuro Ectodermal Tumour). In 2017 we were told that her tumour was in fact called an ETMR (Embryonal Tumour with Multi-layered Rosettes), which was also aggressive and malignant.
Treatment and Hope
Karis had the tumour removed quickly and endured high doses of chemotherapy, twice daily radiotherapy for 6 weeks, followed by maintenance chemotherapy for a year. Times were so hard, and thankfully Karis' tumour didn't come back for 5 years. But the treatment caused so many other medical, emotional and social problems throughout that time.
Living One Day at a Time
As a family we just got on with it. We felt so lucky that after each scan we were told there was no evidence of recurrence and we had our precious Karis by our side. It was like living on a time bomb, but we tried to be positive and take one day at a time.
Our World Shattered Again
Then, in 2018, our lives were shattered again as we found out Karis had another Aggressive Malignant Brain Tumour. After having a biopsy we were told the devastating news that this tumour (Glioblastoma Multiforme) was untreatable and unremovable, as it was growing like a tentacle through her brain. Great Ormond Street told us that they couldn't do any more for our beautiful Karis, apart from a chemotherapy drug that may slow the growth of the tumour down slightly.
Our Beautiful Princess
As you can imagine this was absolutely the worst news any parent could hear, and we just couldn't comprehend life without our beautiful princess. Karis was a poorly child throughout her ten years but loved life and wanted to just be with her family and friends. She was a beautiful girl inside and out and even though how poorly she was, she worried about others and always wanted to help, even when she was so poorly herself. She rarely complained and just got on with things. She had a fantastic cheeky sense of humour.
Her Legacy
Karis saw herself as lucky because she could do certain things that others couldn't do. She was such a brave little girl that touched the lives of so many people, and we miss our beautiful darling Karis every second of the day. Karis is our inspiration in life, our hero and will always be. We also appreciated all the charities who helped us throughout our journey, and we feel as a charity ourselves, we can now offer some relief to other families finding themselves in the same situation as we once were.
"She was such a brave little girl that touched the lives of so many people. Karis is our inspiration in life, our hero and will always be."
Karis' family
Karis Day | 10th December
Every 10th December is Karis Day. Wear your Karis' Helping Hand wristbands with pride and help to make a difference to beautiful children like Karis.
Help Us Honour Karis' Memory
Every pound raised in Karis' name goes to supporting children with brain tumours and their families - so no family faces this journey alone.